目的 了解下肢骨搬运治疗患者参与自身健康照护过程中的体验与需求，为制订基于患者诉求的健康照护参与方案提供参考。方法 2023年2-3月，采用描述性现象学研究方法，对在广东省某三级甲等医院创伤骨科行下肢骨搬运术治疗的12例患者进行半结构式访谈，运用Colaizzi 7步分析法进行资料分析。 结果 共提炼归纳出参与态度差异化（主动参与、被动接受）、参与过程存在障碍（角色思维固化、疾病负担制约、信息困境感知、医疗环境限制）、呈现多维度的参与需求（信息支持需求、情感支持需求、过渡期护理需求）3个主题。 结论 下肢骨搬运治疗患者参与自身健康照护过程中尚存在较多问题，医护人员应帮助其纠正角色认知偏差，提高其自我倡权意识和参与能力，关注其参与过程的障碍因素，优化多元支持系统，以促进患者围术期和过渡期自身健康照护的有效参与。

Objective To understand the experience and needs of patients with lower limb bone transport treatment participating in their own health care process, so as to provide a reference for the formulation of health care participation programs based on patients’ demands.Methods From February to March 2023, descriptive phenomenological research method was used to conduct semi-structured interviews with 12 patients who underwent lower limb bone transport surgery in the Department of Traumatic Orthopedics in a tertiary A hospital in Guangdong Province, and the data were analyzed by Colaizzi 7-step analysis method.Results A total of three themes were extracted, including differentiation of participation attitude (active participation, passive acceptance), obstacles in the participation process (solidified role thinking, disease burden restriction, information dilemma perception, medical environment restriction), and multidimensional participation needs (information support needs, emotional support needs, transitional care needs).Conclusions There are still many problems in patient participation in health care with lower limb bone transport treatment.Healthcare professionals should help patients correct the role of cognitive bias, improve patients’ self-advocacy awareness and participation ability, pay attention to the obstacles in the process of patient participation, optimize the multiple support system, and promote patients’ effective participation in their own health care during the perioperative and transitional periods.

R473.3

广东省科技计划项目（2022A1414020005）；南方医科大学南方医院院长基金项目（2021H008）