[关键词]
[摘要]
目的 系统评价痴呆患者照顾者代理决策体验的质性研究。方法 检索PubMed、Embase、Web of Science、Cochrane Library、CINAHL、PsycINFO、知网、万方、维普等数据库中痴呆患者照顾者代理决策体验的质性研究,检索时限为建库至2025年1月。采用汇集性Meta整合方法对结果整合分析。结果 共纳入12篇文献,归纳为9个类别,整合成3个结果:决策过程的困境与挑战、决策角色的适应与转变、决策情境的权衡与抉择。结论 痴呆患者照顾者代理决策体验复杂多样,家庭、医疗机构、政府和社会等各个部门应关注痴呆患者照顾者代理决策的体验,并提供全方位指导和帮助,以减轻痴呆患者照顾者的心理负担,提高其角色认同感和决策效能感。
[Key word]
[Abstract]
Objective To systematically evaluate the qualitative studies on the surrogate decision-making experiences among caregivers of patients with dementia.Methods The databases including PubMed,Embase,Web of Science,Cochrane Library,CINAHL,PsycINFO,CNKI,Wanfang,and VIP,were searched to retrieve qualitative studies on the experiences of surrogate decision-making among caregivers of dementia patients from the inception to January 2025.A meta-synthesis approach was used to integrate and analyze the findings.Results A total of 12 studies were summarized into 9 categories,and synthesized into 3 main findings:dilemmas and challenges in decision-making processes,adaptation and transformation of decision-making roles,and trade-offs and choices in decision-making situations.Conclusions The experiences of surrogate decision-making among caregivers of dementia patients are complex and diverse.Various sectors such as families,healthcare institutions,governments and society should pay attention to the decision-making experiences of these caregivers and provide comprehensive guidance and assistance in order to alleviate their psychological burden and improve their sense of role identity and decision-making efficacy.
[中图分类号]
R47-05
[基金项目]
中国博士后科学基金(2023M732119)