[关键词]
[摘要]
目的 描述社会再融合的年轻乳腺癌患者社会角色失调的经历,探索其社会角色失调的原因和支持需求,为其社会角色重建提供建议。 方法 应用描述性质性研究方法,采用目的抽样法选取上海市某三级甲等肿瘤医院的23例年轻乳腺癌患者进行半结构式深入访谈,采用内容分析法分析资料。 结果 将年轻乳腺癌患者社会角色失调及其原因提炼为3个主题:社会角色失调的表现(家庭角色出现错位、工作角色呈现差距、社交角色发生中断、预期角色发生失败);社会角色失调的原因(微观身心因素、中观人际因素、宏观社会因素);社会角色调适的支持需求(医疗支持、家庭支持、社会支持)。 结论 多种社会角色失调是年轻乳腺癌患者社会再融合的核心障碍;身心、人际及社会的三重因素共同导致其社会角色失调现象的发生;年轻乳腺癌患者亟需医疗、家庭与社会协同支持。
[Key word]
[Abstract]
Objective To describe the experiences of social role dysfunction in young breast cancer patients with social reintegration,explore the causes and support needs of their social role dysfunction,and to provide suggestions for their social role reconstruction.Methods A descriptive qualitative research method was adopted.Through purposive sampling method,23 young breast cancer patients from a tertiary A cancer center in Shanghai were selected for semi-structured in-depth interviews,and data were analyzed by content analysis method.Results The social role dysfunction and causes of young breast cancer patients were summarized into three themes:the manifestations of social role dysfunction (misplacement of family roles,gap of work roles,interruption of social roles,and failure of expected roles),causes of social role imbalance(micro-physical and mental factors,meso-interpersonal factors,macro-social factors),and support needs for social role adjustment (medical support,family support,social support).Conclusions Multiple social role dysfunctions are the core barriers to social reintegration of young breast cancer patients.The physical and mental,interpersonal and social factors jointly lead to the occurrence of social role dysfunction. Young breast cancer patients are in urgent need of coordinated support from medical,family and society.
[中图分类号]
R473.73;R47-05
[基金项目]
国家自然科学基金青年科学基金项目(72004034);美国中华医学基金会公开竞争项目(20-371)