目的 了解中青年晚期肝癌患者主要照顾者预期性悲伤真实体验,为制订针对性的干预措施提供依据。方法 2023年3-9月,采用目的抽样法选取上海市某三级甲等医院收治的11例中青年晚期肝癌患者的主要照顾者为研究对象,采用半结构访谈法对其进行一对一深度访谈,使用Colaizzi 7步分析法对访谈资料进行分析。结果 中青年晚期肝癌患者主要照顾者预期性悲伤的体验可归纳提炼为3个主题,即预期性悲伤的来源、预期性悲伤的压力表现及预期性悲伤的应对方式。结论 中青年晚期肝癌患者主要照顾者在承担照顾责任的同时,也需面对来自社会和家庭的压力;医护人员应重视照护者的预期性悲伤并对其进行针对性的心理疏导,帮助其采取有效应对措施,改善其生活质量。

Objective To understand the real experience of anticipatory grief among primary caregivers of young and middle-aged patients with advanced liver cancer,and to provide a basis for developing targeted intervention measures.Methods From March to September 2023,purposive sampling was used to select the primary caregivers of 11 young and middle-aged patients with advanced liver cancer admitted to a tertiary A hospital in Shanghai.A semi-structured interview method was used to conduct one-on-one in-depth interviews with them,and the Colaizzi 7-step analysis method was used to analyze the interview data.Results The experience of anticipatory grief among primary caregivers of young and middle-aged patients with advanced liver cancer could be summarized and refined into 3 themes:the sources of anticipatory grief,the stress manifestations of anticipatory grief,and the coping styles of anticipatory grief.Conclusions Primary caregivers of young and middle-aged patients with advanced liver cancer,while undertaking caregiving responsibilities,also need to face pressure from society and family.Medical staff should pay attention to the anticipatory grief of the group,provide them with targeted psychological counseling,help them adopt effective coping measures,and improve their quality of life.

R473.3

上海市医苑新星青年医学人才资助(2022065)；海军军医大学深蓝护理课题(2022KYG39)；海军军医大学第三附属医院“腾飞工程”优护人才项目(TF2024YH03)